United Leukodystrophy Foundation


Below are some testimonials received.

  • The recent Alexander meeting was just lovely and awe inspiring! What a wonderful meeting. It not only was stimulating scientifically, but it was so great to see so many of the families. I have always told everyone that I believe the ULF is a most wonderful organization! Dr. Anne

  • I want to thank you for the wonderful dinner (s) and room you provided my family and I with. We met so many great people. Russ

  • I wanted to thank all of you for the tremendous effort that went into the meeting this weekend. Dr. Albee

  • Thank you for a GREAT meeting! You guys did a wonderful job. It was comforting to be with others. Donna

  • I wanted to thank all of you for such a wonderful and emotional experience. It was a pleasure meeting you. Jackie

  • I just want to give a BIG THANK YOU. It was so nice to be surrounded by other families facing Alexander’s Disease. It felt like a big family reunion. The ULF does a marvelous job at organizing these meetings. Carin

  • Just a note to touch base and let you know how much I appreciated the chance to meet each of you and share information. Debbie

  • We felt the meeting was a resounding success, and we appreciate the obvious effort, planning and work which went into it. Natalie

  • I wanted to thank your organization for hosting such a wonderful conference. It was truly amazing to meet the doctors and hear them speak. Obviously their actions throughout their respective careers and each day have created for these families and patients the “teaspoon” of hope that makes such a difference….. Ellen

  • I wanted to thank you for everything that you do. Being at the confernce made a huge impact on my life. I learned a lot and faced realities that I had been putting off and I found the best group of people.
  • Thank you for your efforts in both support of research and families affected by leukodystrophy. I have gained much strenght from the ULF and found attending the ULF conference to be a life changing experience. Lynne & Phil
  • The family has always appreciated teh support and comfort provided by the ULF. Keith & Martha
  • Thank you for the presentation on Megalencephalic Leukodystrophy with subcortical cysts (MLC) it was very exciting. Jacquelyn
  • Thank you for the Cerebrotendinous Xanthomatosis (CTX) presentation it was very informative. Raymond & Darlene
  • Thank you for the support your foundation has given to families with loved ones who suffer from leukodystrophy. The Board of Deacons; East Main Presbyterian Church
  • Thank you for the work you are doing on behalf of the families devasted by this horrible disease.  Paula, Toni & Joe
  • Words can not express the comfort you bring to all the families living with leukodystrophy! God Bless You! Stanley & Louise
  • I have received the information sent from you; it is very useful to me thanks a lot! Li
  • Thanks so very much for all your hard work and long hours in making the ULF conference possible.  Margo
  • Just wanted to congradulate you all on the July conference. It was super with a capitol S. Gloria
  • Our family benefited greatly from the resources made available to us when our son was locally diagnosed with having an unknown form of leukodystrophy. Best wishes for continued success with the research the foundation supports. Randall & Cherie
  • We salute your science, education and service. Your pamphlet "The Facts aout Leukodystrophy" is the best for coping with the diseases. Dr. Charles
  • I was very impressed witht he way the type of leukodystrophy I was looking for was explained. Donna
  • The Medical and Scientific Advisory Board are members of many organizations. I think there was a unanimous feeling among the group that this organization (ULF) is unique and that this is the organization that we give our greatest loyalty to.     Dr. Hugo Moser





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(c) United Leukodystrophy Foundation, Inc.
Sycamore, Illinois USA
www.ulf.org






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