Listed below are just a few of the many thousands of sites on the internet related to Leukodystrophy. These links should help you get started researching any topic. If there is a particular topic that you would like to see get special attention on the ULF Resource Page please let us know. You may also reference our sites geared to the health care professional.

General Leukodystrophy Links

Other Related Links

Childhood Incontinence Resource
Clinical Trials.gov
GeneReviews
GeneReviews - Refsum Disease
• GENETIC ALLIANCE
• HIde & Seek Foundation
• Home Health Care
• Incontinence Resource Directory
• Kennedy Krieger Institute
• MEDLINE Plus
• National Institutes Of Health
• National Library of Medicine
• The Neuropathy Association
• NINDS-National Institute of Neurological Disorders and Stroke
• NORD-National Organization of Rare Disorders
• The Peroxisome Website
• Stroke Resource

Resources for Disabilities

• Ability's Assistive Technology Links
• Canine Companions for Independence
• Disability Information and Resources
• Great Outdoor Recreation Pages
• The Minnesota Broken Wing Connection
• National Patient Travel HELPLINE (phone 1-800-296-1217)
• Used Equipment Referral Service
• Web Sites for People with Disabilities
• Wheelchair Resource
• Yahoo Disability Related Search

Personal/Financial Resources

• UnitedHealthcare Children's Foundation, Inc.
• Sponsored by the Arc, has information about creating special needs trusts and setting up guardianships for a mentally retarded child
• National Organization on Disability offers fact sheets about what government services are available and whom to contact to find out more about them
• National Information Center for Children and Youth with Disabilities offers state by state resource sheets