Timely and professionally prepared articles are also published in the ULF NEWS (published quarterly), and an annual conference is organized which is attended by nearly 300 people offering direct contact between professionals and families and has available an extensive library of printed materials as well as video materials.

Links to Leukodystrophy Information Geared for Health care Professionals

• Mutation Database for X-linked Adrenoleukodystrophy
• Abstracts:Molecular genetics of Adrenomyeloneuropathy
• Center For Children With White Matter Disorders
• Clinical Trials Resources
• DoctorNet Online ALD Links
• Dysmyelinating Disease
• Family Link-Diseases Treated With Cord Blood
• Focal Gallbladder Wall Thickening
• GENETIC ALLIANCE
• Globoid Cell (Krabbes) Leukodystrophy
• Hereditary Motor Sensory
• HUGO Mutation database initiative
• Kennedy Krieger Institute
• Medinex
• MEDLINE Plus
• Metachromatic Leukodystrophy
• National Institutes Of Health
• National Library of Medicine
• The Neuropathy Association
• New England Journal Of Medicine Online Version
• NINDS-National Institute of Neurological Disorders and Stroke
• NORD-National Organization of Rare Disorders
• OMIM Query: To Search Leukodystrophy
• The Peroxisome Website
• Stroke Resource
• Welkom bij de BELANGENVERENIGING X-ALD (Dutch)
• Wheelchair Resource